August 25th this year is the seventh National Disability Prevention Day. The theme of this Disability Prevention Day is "Preventing Congenital Disability and Protecting a Bright Future".
Doing a good job in disability prevention is of great significance for ensuring people’s life safety and physical health, improving the health quality of the whole nation and promoting high-quality economic and social development. Strengthening disability prevention is an important task to serve the national development strategy in the new era, a realistic need to realize the people’s yearning for a better life, and an inherent requirement to promote the high-quality development of the cause of the disabled.
Chongqing Municipal Party Committee and Municipal Government attach great importance to the work for the disabled, and integrate the work for the disabled into the overall situation of economic and social development. Chongqing Disabled Persons’ Federation followed closely the action plan of China Disabled Persons’ Federation, and implemented the action plan of disability prevention in depth in combination with theme education. A number of service guarantee measures were solid and powerful, and key projects continued to advance, and the work of disability prevention achieved remarkable results.
Our city has actively implemented the National Disability Prevention Action Plan (2021-2025), and the five major actions, namely, the popularization of disability prevention knowledge, the prevention and control of birth defects and developmental disabilities, the prevention and control of disease disability, the prevention and control of injury disability, and the improvement of the quality of rehabilitation services, are being promoted simultaneously. It is estimated that by 2025, the disability prevention policy system covering all fields of economic and social development will be further improved, and the life-cycle disability prevention service network of the whole population will be more sound. The literacy of the whole people in disability prevention has been significantly improved, the main disabling factors such as heredity and development, diseases and injuries have been effectively prevented and controlled, the rehabilitation services for the disabled have been continuously improved, and the main indicators of disability prevention are in the forefront of the western region.
Pay attention to the health of the starting point of life
Prevention of birth defects
The birth of a new life, for parents, in addition to joy and expectation, comes the responsibility of parents. How to make children grow up healthily, find hidden dangers as soon as possible and solve them in time is a difficult problem for every parent.
Therefore, it is an urgent and important task for the government, all walks of life and disabled workers to control or reduce the occurrence of birth defects and congenital disabilities from the source to the maximum extent and reduce the burden on society and families.
Ms. Liu, who lives in Yunyang County, is a pregnant woman with mental retardation. After learning that she was pregnant, Yunyang Disabled Persons’ Federation and Yunyang County Health and Health Committee actively helped Ms. Liu to file files and have a free birth check-up, standardized her birth check-up five times during pregnancy, and publicized her knowledge about birth defects prevention such as perinatal care and neonatal disease screening.
"After being admitted to the hospital, our Disabled Persons’ Federation cooperated with the hospital to set up a professional joint diagnosis and treatment team led by the leaders in charge of the business, including the head of the medical department, the director of obstetrics, the professional midwife, the jingwei expert and the director of pediatrics, to formulate a diagnosis and treatment plan and arrange a separate diagnosis and treatment ward. Under the collaborative treatment of multiple departments, Ms. Liu and her mother are safe and healthy." The relevant person in charge of Yunyang County Disabled Persons’ Federation said.
Pay attention to the source and effectively control birth defects and developmental disabilities. In recent years, Chongqing Disabled Persons’ Federation has actively played a leading role in disability prevention, fully implemented the three-level prevention and control strategy of disability prevention covering the whole life cycle of the whole population, refined and decomposed key tasks, defined responsible units, coordinated more than 40 relevant units to set up Chongqing Disability Prevention Expert Advisory Committee, and innovatively implemented disability prevention projects. The "Caring for the Future" project was piloted in 12 districts and counties to explore beneficial ways to reduce birth defects and developmental disabilities.
At the same time, the Municipal Disabled Persons’ Federation actively cooperated with the Municipal Health and Wellness Committee to jointly issue working documents to strengthen policy propaganda, and combined with the advantages of medical institutions with a wide range and close to the masses, made targeted publicity on rehabilitation assistance policies for disabled children in medical institutions, reminding guardians to apply for assistance in time, early diagnosis, early intervention and early rehabilitation.
In addition, the Municipal Health and Health Commission simultaneously improved the service system, strengthened the integration of medical resources in the city, and established the Chongqing Birth Defect Prevention and Control Management Center, forming a comprehensive birth defect prevention and control system with hospitals with prenatal diagnosis technical service qualifications as the center, district and county medical and health institutions as the main body, and street community health service centers (township hospitals) and other medical and health institutions as supplements. Scientifically integrate resources, integrate and supplement folic acid to prevent neural tube defects, free pre-marital medical examination, free pre-pregnancy eugenics health examination and other projects, strengthen pre-marital health care work in conjunction with the Civil Affairs Bureau and other five departments, and promote the "one-stop" service model of marriage registration, pre-marital examination and birth guidance. The rate of pre-marital examination has increased from 18.84% in 2018 to 61.17% in 2022, with more than 200,000 beneficiaries each year.
"We are strengthening the administrative licensing and supervision of prenatal screening and diagnosis technology, organizing the training and assessment of prenatal diagnosis and screening technicians in the city every year, standardizing the access of institutions and personnel, improving the quality of screening and diagnosis and reducing potential risks." The relevant person in charge of the Municipal Health and Health Commission said.
At present, the city has initially established a three-level prevention and control system covering all stages of birth defects, including pre-marriage, pre-pregnancy, pregnancy, newborns and children. By the end of 2022, the city’s pre-marital medical examination rate reached 61.17%, the pre-pregnancy eugenics health examination rate reached 95.76%, the prenatal screening rate reached 91.17%, the neonatal genetic and metabolic diseases screening rate reached 98.59%, and the neonatal hearing screening rate reached 97.56%.
Raise the standard and expand the surface rehabilitation service.
Concentrate on helping children grow up together
"Now children can not only run and jump up and down stairs, but also make great progress in cognition, language and socialization. As a parent, I am very pleased." Ms. Wan, from Yuzhong District, was deeply moved by the changes in her children.
According to reports, Ms. Wan’s child was diagnosed as full-scale developmental retardation by the Children’s Hospital affiliated to Chongqing Medical University at the age of 5. At the doctor’s suggestion, the parents decided to let the child undergo intellectual rehabilitation training.
With the enthusiastic help of the teachers of Rongzhi Children’s Development Rehabilitation Training Center in Yuzhong District, through the "one-on-one" rehabilitation training mode supplemented by group classes, the cognitive, social, life intelligence and coarse/fine movements are intensively intervened by using the intervention methods such as sensory therapy and physical therapy, and at the same time, flexible and diverse teaching methods such as life scene simulation teaching and community teaching are used to meet children’s training needs and promote all-round development.
"Now, 10-year-old Xiaowan is no longer the timid and fragile child at the beginning. From walking difficulties to running freely up and down stairs, from rarely talking and not actively expressing to actively greeting and chatting logically, never eating with chopsticks to having basic self-care ability, every step of progress is hard-won for him and his family." The relevant person in charge of Yuzhong District Disabled Persons’ Federation introduced. At present, Xiaowan has successfully entered the mentally retarded school in Yuzhong District of Chongqing and started a brand-new life journey.
Doing a good job in rehabilitation and assistance for disabled children is related to the vital interests and healthy growth of disabled children, to the livelihood and happiness of thousands of families, and to social stability and civilization progress. In recent years, the Municipal Disabled Persons’ Federation has fully implemented rehabilitation assistance for disabled children. On the one hand, comprehensively promote the standardization construction and capacity improvement of rehabilitation institutions. Successfully held the "Sichuan-Chongqing-Tibet" high-quality rehabilitation resources supply-demand docking negotiation and promotion activities in southwest China, and more than 60 disabled persons’ federations and rehabilitation institutions in the three places participated. We will promote the three-year action of "peer-to-peer" rehabilitation institutions for disabled children, and organize rehabilitation experts to investigate and guide 77 rehabilitation institutions for disabled children. We launched a special campaign for fire safety supervision, and conducted two rounds of on-site safety assessment of 104 private rehabilitation institutions for disabled children in the city to further improve the supervision efficiency of rehabilitation institutions. Up to now, there are 39 3A-level designated institutions and 193 designated service institutions (343 categories) for the rehabilitation and assistance of disabled children in the city.
On the other hand, accelerate the digital reform of handling services. We will comprehensively deepen the promotion of digital reform to the field of rehabilitation and assistance services for disabled children, strive to promote the convenience measures of "running at most once" and "not running once", and actively guide guardians of disabled children to apply for assistance online. Guide districts and counties to optimize the diagnosis subsidy for suspected disabled children, and explore and promote the inclusion of "free application and enjoyment". Further strengthen the safety management of the management information system for rehabilitation assistance services for disabled children, and ensure the standardized operation of the system and information security. Strengthen the comparative analysis of service data for disabled children, accelerate the development of the module "Dynamic Monitoring of Rehabilitation Services for Disabled Children Aged 0-14", regularly monitor and compare the rehabilitation services received by disabled children, and ensure that disabled children can enjoy various policy treatments in time.
At the same time, increase the rehabilitation assistance for disabled children. In 2022, 179 disabled children who live in remote rural areas and cannot go to institutions for rehabilitation due to unaccompanied will be provided with on-site rehabilitation services. We will carry out pilot projects of early intervention for children with disabilities, and explore pilot projects of family-centered early intervention and rehabilitation services for children with physical and hearing disabilities aged 0-3 years in four districts and counties. The number of disabled children’s rehabilitation assistance is increasing year by year, and 8,203 disabled children have been assisted this year.
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"Caring for the Future" Screening Guide Care for Special Groups
In recent years, Chongqing Disabled Persons’ Federation has carried out "Caring for the Future" as an innovative pilot project-caring for women of childbearing age with intellectual and mental disabilities and mothers of disabled children. To carry out genetic testing and prenatal and postnatal guidance for women with intellectual and mental disabilities, mothers of disabled children and immediate family members who are suspected of genetic diseases.
By the end of 2022, the city has carried out pilot projects in 12 districts and counties, providing 18,856 screening, 1,881 genetic testing and 3,123 birth guidance for women with intellectual and mental disabilities of childbearing age and mothers of disabled children. Innovatively implement the surgical rescue project for children with congenital cleft lip and palate, and prevent and reduce birth defects and disability through "early intervention, early treatment and early rehabilitation".